CDC works 24/7 to protect America from health, safety and security threats, both foreign and in the U.S.
NOFO # DD24-0051 aims to support non-research, cooperative agreement applications to conduct population-based surveillance of congenital heart defects (CHD) to describe various health outcomes, including health equity, and to identify opportunities to enhance the health of individuals living with CHD. This grant focuses on both a required component (A) and an optional component (B), targeting entire states or specific regions within states. It primarily seeks to leverage existing data sources for identifying individuals with CHD, such as jurisdiction birth defects surveillance systems, electronic health records, and administrative data. The project's overarching goal is to fill the significant data gaps on the epidemiology of CHD beyond early childhood, which is crucial for understanding the disease's survival rates, healthcare utilization, and long-term outcomes, thus informing efforts to improve health and well-being among people living with CHD. Key objectives include assessing survival, comorbidities, healthcare utilization, and health equity among people with CHD, examining the impact of healthcare policies and COVID-19 on this population, and developing a machine learning algorithm to enhance CHD data surveillance and analysis.