OHF: Global Registry Initiative

    From Oxalosis and Hyperoxaluria Foundation

    The mission of the Oxalosis & Hyperoxaluria Foundation (OHF) is focused on supporting research into the causes and treatment of hyperoxaluria, a rare condition. By funding research, OHF aims to advance understanding and enhance treatment options for those affected by this condition.

    Type of Support

    Overview

    The grant program aims to support the development of international collaborative patient registries and databases to better understand the clinical manifestations and prognosis of primary hyperoxaluria. It seeks proposals that explore the influence of genetic, cultural, and environmental factors on the disease, with particular interest in how urinary oxalate levels, dietary intake, and genotype-phenotype correlations affect renal outcomes. The program is open to funding projects in countries without existing databases, with a focus on establishing standardized registries for research purposes. Successful proposals will outline a detailed data-sharing plan, be capable of achieving predefined benchmarks for registry maintenance, and contribute to improved treatment strategies and a framework for evaluating new therapies.

    Eligibility

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    Submission

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