The mission of the funder, although not explicitly detailed in the provided information, centers on enhancing healthcare decision-making through the dissemination and implementation of patient-centered outcomes research findings. The goal is to inform patients, clinicians, and other stakeholders in healthcare about research outcomes to improve healthcare practices, policy, and individual health decisions.
The forthcoming Topical PCORI Funding Announcement (PFA), set to be issued on May 7, 2024, aims at funding high-quality, patient-centered comparative clinical effectiveness research (CER) focusing on rare diseases. The grant encourages investigations that look into questions essential to improving care and outcomes for rare disease patients and their caregivers. Recognizing the broad spectrum and the common challenges faced by individuals with rare diseases, this announcement seeks proposals that could significantly impact patient care and decision-making across multiple rare diseases. The grant will accept applications for projects with direct costs up to $12 million and durations of up to five years, including the coverage of patient care costs within the direct cost limit. This initiative emphasizes patient and stakeholder engagement in proposal development to ensure the research addresses meaningful, patient-centered questions.